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[CLOSED] Will you take our In America survey and help others understand the true impact of ovarian cancer?

The lifetime risk of developing ovarian cancer for a woman living in the United States is about 1 in 78. Share your experience with ovarian cancer in our Advanced Ovarian Cancer In America Survey. By taking this anonymous survey, you can help break the silence on ovarian cancer.

  1. I will take part in the survey. I guess I can say even though I can’t get rid of it I am a survivor from all I’ve dealt with. I was dx at age 60 in May 2022 OC High Grade Serous Epithelial Stage 4b Mets to liver. Presently, two more masses in the liver, right kidney and lymph nodes in the right urethra as nodules in the peritoneal. I’m, also, platinum resistant.

    1. I would be happy to respond to the request for OC survivors to take the survey. I was diagnosed 3 years ago with Stage 4 advanced metastatic poorly differentiated adenocarcinoma of likely ovarian origin, since no ovaries, tubes or uterus were present at the time. After frontline carbo/taxol x 7, exploratory and then debulking surgeries, genetic and genomic testing showed BRCA 1 and 2 neg, and molecular mutations of LOH, TMB, MSI high and PD-L1, I began infusions of Keytruda nearly 3 years ago. I have been NED for over a year and feel quite well with no side effects. I am 77 years old now, walk at least 2 miles a day, take a Pilates class once a week and swim a half mile nearly every day. I would be happy to take a survey or answer any questions.

      1. Thank you for sharing your story with the community! It is great to hear that you aren't having any side effects and are able to stay active after your diagnosis. The survey being referred to in the post is now closed, but if you would like to share your story for others to read and learn from, you can click the link I have posted below. This will allow other members of the community to read about your journey and leave any questions or comments. I am so glad you are a part of this community! Sending you positive thoughts. -Sophie, team member

        https://advancedovariancancer.net/stories/new

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