Ive been on Lynparza 400mg daily and Ned for a couple years after Stage IV Ovarian Cancer dx Jan 2023. Joint pain, fatigue but nothing that I cant tolerate. I was first placed on Zejula but I was left with debilitating blood and platelet counts causing me to be hospitalized with transfusions of both.
NlehrerMember
Hello, yes all my levels have been doing good. Wbc and platelets are always on the low side but nothing concerning. Im 3 1/2 yrs in remission from ST IV. Amen!
Lori.FosterCommunity Admin
What great news! Thanks for the update. It brightened my day. Warm wishes. - Lori (Team Member)
CommunityMemberd31e7cMember
No.
DonnaFACommunity Admin
, are you happy with your current treatment protocol? How are you doing today? - Warmly, Donna (Team Member)
scarlynnMember
Yes, ZEJULA. Started on 300mg daily and developed critical level thrombocytopenia and required a week of hospitalization and platelet transfusion. Held for a month and restarted on 200mg daily and developed severe anemia with hemoglobin 6.7 requiring blood transfusion. Dose held for a month and now restarted at 100mg daily. Additionally, the fatigue has been THOROUGHLY DEBILITATING! But I am thankful to be alive.
Rackel NderiCommunity Admin
thank you so much for sharing. This sounds like such a rollercoaster. How have you been doing lately? And ugh fatigue is the WORST. Warmly, Rackel (Team Member)
DonnaFACommunity Admin
, that sounds like it was a terribly rough experience! And fatigue is so difficult to live with. How are you doing today? - Warmly, Donna (Team Member)
brittblessed1Member
Yes, first time around zejula, too many side effects. 2nd go round just started Rubraca
Rackel NderiCommunity Admin
what side effects were you experiencing and how has it been so far on rubraca? Warmly, Rackel (Team Member)