2019: The Year My Ovarian Cancer Journey Began

Last updated: June 2022

I thought I was having another diverticulitis flare but a CT scan showed right ovarian cancer. I underwent a TAH (all reproductive organs removed). Staging showed 1C3 with positive cancer cells in the abdominal washing. Then 3 rounds of Taxol/Carboplatin chemo without complication. Genetic testing I am negative for BRCA and others.

Recurrent ovarian cancer

About 16 months later I was symptomatic in my left lower quadrant. CT showed a mass that was golf ball sized and I needed a biopsy. IR (interventional radiology) performed this and the biopsy confirmed a recurrent ovarian cancer. I had this surgery in June 2021. In just 2 months, this mass had grown to small grapefruit size. The pathology report showed a "remnant" from the initial surgery. I only made it through 5 of 6 planned treatments, using the same drugs.

Complications

I had a lot of complications: After #2-C-dif, then terrible GERD, hospitalized in November 2021 for a perforated bowel, and last but not least....extensive blood clots in my legs. January 2022 found to have a right lower lobe nodule that "lit" up on PET. But...IR and Pulmonary said the nodule was too small/risky to biopsy and wait 3 months. The oncologist was confident this was metastasis but needed a biopsy. In May I had chest CT (w/o contrast) and this radiologist's interpretation said " lessening inflammatory process" and to repeat the study in 3 months.

My journey continues

I'm baffled by this because I always thought a PET scan was 100%. August I will receive CTs for the abdomen/pelvis and chest so I'm in limbo yet again. I don't think I'm a candidate for chemo again nor do I think I'd be willing to go through those treatments. The Neulasta shots were very painful too. Oncology "mentioned" immunotherapy in the future.

Sooooo my journey continues. . . . .

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